In the past, the siloed nature of hospital systems and privacy concerns served as a major bottleneck for it’s inclusion in RWE generation strategies.

As a result, traditional RWE generation efforts relied on accessible but sub-par data sources, leading to data relevance issues and incomplete datasets. The only resort used to be chart review and Observational studies, which are in many cases prohibitively expensive.

LynxCare was founded from an individual patient's need. Securing patient's interest is at our core. We are convinced data should also serve a bigger scientific purpose so it can help new treatments and other patients, however never purely commercial interests.

As such, LynxCare advocates for clear data governance structures (i.e. ethical and data committees) that science and patient's interests are safeguarded. With proper data governance in place, trust in data is ensured, so stakeholders can collaborate efficiently.